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Autoimmune diagnosing problem

Autoimmune Diseases | Last Active: Jan 29, 2022 | Replies (223)
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@steeldove

I've been having similar symptoms and done a lot of reading and research on my own and come to the conclusion that it's small fiber polyneuropathy. Tbe leading researcher in that area is Louise Oaklander, MD, PhD in Boston. Read about her research work and about neuropathycommon.org. My neurologist told me tbat not much iz known about sml fiber polyneuropathy and suggested I try to find clinical research projects to join.

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Replies to "I've been having similar symptoms and done a lot of reading and research on my own..."
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jul 31, 2017

Hello @steeldove,

I'd like to add my welcome, and thank you for posting your message on Mayo Clinic Connect. In addition to Mentor @johnbishop's resources, here's some more information about small fiber polyneuropathy, from Mayo Clinic:
"Peripheral neuropathy can affect one nerve (mononeuropathy), two or more nerves in different areas (multiple mononeuropathy) or many nerves (polyneuropathy). Carpal tunnel syndrome is an example of mononeuropathy. Most people with peripheral neuropathy have polyneuropathy." http://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/home/ovc-20204944

@steeldove, would you share more details about your diagnosis? How are you currently managing your symptoms?

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