Connect
← Return to Husband with AML facing a stem cell transplant
Discussion
Husband with AML facing a stem cell transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 7 11:43pm | Replies (117)Comment receiving replies
To you both! My days following the transplant included 2 more rounds of a chemo for a research study i was in. Fatigue did get me. Partially due to the nausea meds, one being Compazine which made me tired. I also had nausea. Yikes for a couple days. The meds did not stop it. I was then given a nausea med called "emend" that was good for 72 hours. It worked. They said at the City of Hope that it is only used in tough cases. Well, barely eating for two days is not good. I say always tell the daily visiting DR and your RNS how you feel. Mine listened. After the 72 hour pill, it was for my graft to take hold. I had my transplant the 9th and was out of the hospital the 29th.
By the 29th my graft numbers were very good. I had MDS, so my symptoms were a bit lighter as time went on. No cancer cells to fight. Just following all the guidelines for th4e rest of my 100- day journey and beyond.
rayj and Mary, I hope you keep all of us updated so we know what is going on and we can support you. Lori always has bunches of info to share. A Godsend.
Replies to "To you both! My days following the transplant included 2 more rounds of a chemo for..."
Hi guys. Went yesterday for evaluation BMT. UNC Chapel Hill NC. We discussed value of trans plant vis a vis new drugs action. Seems that although I have made huge progress, I have an errant gene activity. 5 and 9 are abnormal
Although no one is pushing for the transplant, the evidence suggests that it is one way to control it. I did some clinical volunteering with DNA and blood work late last year that turned it up. That was before the radiation treatments for the one 9mm site I had. I will probably go ahead and do transplant. I have no guarantee that it will be substantially better than 6 to 8 rounds of chemo and then maintenance, because of the effectiveness of the new drugs therapy. They said I could wait and see , but if my numbers started to go back up I could not get transplant until they reduce again. Then too, I would not be getting younger. Still have a while to formally decide. Will probably get the preliminary testing out of the way in case I have other issues that would preclude transplant
Connect
Good morning!
Thank you for your kind words and encouragement. My husband’s transplant went well yesterday, no complications! Actually, it was quite moving. The chaplain said a beautiful prayer just before the stem cells were infused. I can’t tell you how it felt to watch the blood move in the IV line and into him. My heart was bursting with gratitude and hope.
After a couple of hours, he ordered pancakes and potatoes for dinner! I felt all the prayers being sent up for him/us, truly.
Another fun sign we got was that his nurses’s mane was Abby. That’s our beloved dog’s name too. So we felt like our “pack” was together in spirit! lol.
My husband is good about telling the medical team if he has any new symptoms. We realize how important that is to stay ahead of any complications. I also know that the next couple weeks will not be a walk in the park for him. But I trust the team caring for him to help as best they can to keep him comfortable and nourished. Thank you and @loribmt for generously sharing your experiences and for your support.
Here’s a photo of one of the walls in my husband’s hospital room. We not only celebrated his new re-birth but also our 19th wedding anniversary yesterday! Such a blessing.
@katgob I pray you continue to heal and recover nicely!
Mary