Thank you brandysparks for the clarification. I hope I did not imply LS is anything other than what is suspected to be an autoimmune condition; if I did I apologize. I am a retired medical provider so I understand. But, I am also always surprised by how many people (including women's health providers who have never had to manage a patient with LS) haven't even heard of the condition. I probably would have no clue what LS was if I did not have it myself. It's not necessarily a tabletop discussion topic aside from those who have it, know someone with the condition or take care of those who do. So the general ignorance on LS is understandable. Too many people (men get LS too) have no idea what they have until the condition is so unbearable that they finally seek out help & get properly diagnosed. I am so grateful for forums like these so we can share experiences, advice, love & support with each other. Hugs to all.