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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Jun 12 9:01pm | Replies (46)

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@crazykbl

The doctor's name is Joshua Snyder from OCR . And a northern front range. The OCR place has helped me the most and got me a lot of stuff figured out for me and her OCR doctors. The other the place that specializes in UBS is up in Aurora EDS. I have other posts about my heart and about about my GI stuff too I didn't know that and what would EDS but this doctor told me the OCR
doctor or my immune system to and other things told me it said yep that sounds like he .EDS. he asked me have you been tested for it I said no and then he said here is a doctor but has 18 months to 24 months waiting list I'm going to get your referral to go to him and when I looked it up I said wow that makes sense from my heart problems to my GI problems to my immune system problems I've to my pot problems to my low blood pressure problems to everything I feel like I was going crazy but now I know I'm not with all my health problems it's probab EDS A NEUROLOGICAL CONDITION CALLED DMD. TO BE TESTED BY WHAT CAN ADULT CONGENITAL TESTING JUST LIKE EDS2 AND SAID IT'S DMD ARE EDS AND IT SOUNDS LIKE I HAVE MY SYMPTOMS FROM MY I HAVE A LOT OF TINGLING AND TROUBLE WALKING TOO SO IT'S ONE OF THE TWO BUT IT YOU GO CRAZY WHEN DOCTORS START CALLING YOU HYPOCHONDRIACS AND START CALLING YOU HAVE MENTAL DISORDERS AND YOU KNOW YOU DON'T SO HANG IN THERE AND DON'T GIVE UP AND I WAS GLAD THIS DR JOSH JOSHUA SNYDER SAID NOPE IT'S NOT IN YOUR HEAD IT'S A REAL CONDITION OF EDS OR DMD. BUT MY GOD HAS BEEN A GOOD GOD AND I KNOW HE'S TOUCHED MY BODY AND I KNOW HE'S PROBABLY HEALED IT TOO OR KEPT HIS HAND UPON ME.,🙏🙏😇😇😇

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Replies to "The doctor's name is Joshua Snyder from OCR . And a northern front range. The OCR..."

@crazykbl, I'm sorry that you, like other patients diagnosed with Ehlers-Danlos syndrome, are told "it's all in your head." EDS is a real diagnosis that can affect many aspects of your health. You may be interested in following the posts by Mayo experts in the
- Ehlers-Danlos Syndrome Blog https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/

For example, see this 3-part series:
- Gastrointestinal Concerns for EDS Patients https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/gastrointestinal-concerns-for-eds-patients/
- GI and EDS/HSD Part II https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/gi-and-edshsd-part-ii/
- GI Part III Bloating Treatment Options https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/gi-part-iii-bloating-treatment-options/