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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Jun 12 9:01pm | Replies (46)

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@crazykbl

There is a book out there on Amazon it's called the paintings of phenomenon the fainting phenomenon book 📖. It talks a lot about pots and a different medical stuff it has a lot of different stuff in it you can buy it on Amazon. About the book and it gave me a lot of insight and it gave me a lot of tricks and it helped me a lot even though I probably they think I I it's secondary to what I have they think now I have Eds I'm waiting to see the eds doctor here and Colorado and I'll be about 18 to 21 waiting.... A hip doctor at Costco as final of the Rockies that figured that I have EDS because my hip was torn and I had in hip impingement and I have very sexy stretchy skin and I have very bad my joints don't fit together and he was like I'm not doing your hip replacement your hip to fix your hip because you need to see the eds doctor. Your joints are too loose but after you see the hip doctor in 24 months I'll probably give you a whole new hip replacement. But best alike on your journey on what she had and prayers to 🙏🙏😇😇

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Replies to "There is a book out there on Amazon it's called the paintings of phenomenon the fainting..."

That's great that you found someone...not so great that it's such a long wait! I'm impressed the surgeon caught the hypermobility. Most providers I meet, especially orthopedists, with the exception of PTs are completely unaware.