← Return to Treatment Guidance Please...Bronchiectasis/Asthma/Reflux

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@sueinmn

@narelled23 Perhaps I am missing something in the diagnostic history above, but I do not see the NTM diagnosis?
Your history reads much like mine - long-term difficult to treat asthma with bronchiectasis. Even after antibiotic treatment, I never felt well until we got the asthma controlled about 2 years ago. It was a concerted effort by the Pulmonologist and me to find the right combination of medication (Symbicort twice a day, Singulair once a day), 7% saline, airway clearance, exercise and deep breathing cycles. That ultimately meant reducing my use of 7% saline nebs to 2-3 times per week, using the Aerobika for airway clearance once a day, and huff coughing or deep-breathing cycles for the other session.
As for the volume of mucus you are experiencing, perhaps it is an irritation response to vigorous airway clearance? I have learned that if I try to clear "every last bit" of mucus from my lungs I produce more and more - to the point where I constantly feel like I am drowning. And unless I am fighting an exacerbation (illness) I do not need 7% saline daily to help clear my lungs. Perhaps there is something to the recommendation from the respiratory therapist?
I understand that the Lung Matters protocol is very specific, but as with every other form of treatment, it is not "the only way" because each one of us is living with a different version of lung disease and our own unique body. In my case, the less rigorous regimen has kept me healthy for over 2 years and counting. Unless I have a respiratory virus, I only have about and ounce of mucus per day - yet my lungs sound clear with a stethoscope.

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Replies to "@narelled23 Perhaps I am missing something in the diagnostic history above, but I do not see..."

Sorry Sue...I need to update my medical history to include NTM MAC diagnosed.

Thank you for your thoughts...much appreciated. Yes...I am focusing on finding out what it is I need to treat my particular issues and realise that blindly following the LM Protocol is not necessarily going to be best for me.

It is encouraging to hear that your perserverence with similar issues has paid off.

Thank you, Sue. You give me hope.

Sue, just to clarify...I am barely aware of having asthma ... they had to give me an asthma provocation test to be sure I actually did have asthma at all... and apart from the occasional temp/exercise induced cough I am unaware of it. I generally don't wheeze. So how us asthma a problem for me other than being diagnosed with it. Frustrating!