Thank you for your reply. I've done home infusions 3 separate times with a nurse coming in once a week. I'm still under home health care, but just every two weeks right now since I'm not having any treatment. Fortunately my insurance covers that.
My dilemma is finding a doctor that knows what to do. My second ID doctor said I was lucky the first one didn't kill me!! He's the "best" and only one locally, lots of great reviews. Second is the one that didn't know Arikayce is a specialty drug and ordered it from my grocery store pharmacy!
I don't know why the first doctor that ordered Amikacin IV required me to go the a hospital 25 miles away (not the one by my house) twice a day for infusions and labs during infusions. I don't see anyone else dealing with that kind of stuff. This was the second treatment after reacting badly to Imipenum IV.
Just very frustrating.
How do people manage to go to Mayo 400 miles away for treatment?
I'd pull my hair out, but it's falling out too much already!!!