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Welcome back, @bobsconnect! We're thrilled that you've returned, and glad to know that you are faring better. True to the saying, "Behind every successful man there stands a woman," it is indeed wonderful to have that encouragement and support...sincere kudos to your wife.
@bobsconnect, did you notice any significant side effects from the Cellcept? A few Connect members have posted about immunosuppressant 'challenges' and I'm sure they would appreciate your insight.
Are you still averse to "tonic water (yuk), & pickles (yum)" – (one of your past posts) 🙂
Replies to "Welcome back, @bobsconnect! We're thrilled that you've returned, and glad to know that you are faring..."
Thanks much for the update, @bobsconnect; I'm so glad to know that you are doing relatively well.
I was scouring through some of your earlier posts, and came across this message, hence the mention of pickles and tonic water:
You may click on this link, http://mayocl.in/2uMc9wc, but I've also copied it below for your convenience:
"My rheumatologist at Mayo Scottsdale, who I see regularly for my Wegeners & peripheral neuropathy, prescribed 0.125mg of Pramipexole (very small white tablet) twice a day when needed for leg cramps and my restless leg syndrome (RLS). I have used it for over a month and it has relieved the gripping leg/toe/foot cramps at night. When I have an over active day, I know I can expect cramps at night. So I take 2, about an hour before I retire with no cramps/RLS. I don’t take it for minor cramping which I seem to get anyway. My co-pay for the Rx is only $5/months supply which is cheaper than mustard, tonic water (yuk), & pickles (yum). I drink tons of water living in Arizona..."
Please keep us informed of your progress, and/or developments, and continue posting and sharing.
Cheers & Best Wishes
Connect
I haven't noticed any unusual side effects taking Cellcept. I found it amazing that this drug is used for a variety of health issues. I have been taking 2-300mg tablets, twice a day for almost 6 years, which was soon after my first visits with my Mayo rheumatologist. He is treating a number of GPA (Wegeners) patients with great success. To tell you the truth, between the initial Rutuximab infusions and Cellcept, I am almost a new person than I was even 3 years ago.
Now, this med is not a cure, and I could be in remission, and may be for years. Even 20 years ago people with GPA didn't live more than 5-10 years. So, this is a miracle treatment to me, because I fall within that 5 year window.
I am not averse to pickles or tonic water (especially mixed with Kettle One, and a twist) that you mentioned that I can recall. That use to be one of my favorite social cocktails. However, I have stopped drinking. I might have a beer once in a great while. The concoction of meds forbids me any alcohol. Believe you me, though, I've tried a ton of different "remedies" these past few years. However, I don't recall these particular ones. Refresh my memory.
I hope I was able to help. Happy Independence Day.