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DiscussionAnyone taken the Big 3 on every other day dosing schedule?
MAC & Bronchiectasis | Last Active: Jun 16 1:56pm | Replies (20)Comment receiving replies
Replies to "I don’t want to influence or discourage you in any way, your docs will advise you..."
Wow…this is very helpful…I was on all 3 until the Rifabutin also caused TERRIBLE flu like symptoms. The pulmonary doctor took me off all 3, so now I am not taking any meds and waiting for an appointment for a consultation with an ID doctor…I have been waiting months!! It is good to hear that the 2 other meds seem to have worked without the rifabutin.
Thanks so much for sharing your journey & prayers for a “false positive”!! My ID Dr did order a eye, hearing & EKG as well prior to starting treatment for baseline on eyes & ears but I also have AFib which I take a Beta Blocker ( Carvedilol) for controlling heart rate. I’ve been told that the meds for AFib don’t play well w the antibiotics used for MAC…so that’s an added concern. Please keep us abreast of any updates…best of luck & thanks again!!