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Underwear options when lichen sclerosis flares

Autoimmune Diseases | Last Active: Jun 15 4:56pm | Replies (35)
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@brandysparks

Thank you so much for this @triciaot !! This is a really inventive, creative idea!

I even wondered while going through the excruciating healing process from the laser ablation if there wasn't a way to cover the abladed skin of the vulva with something to reduce, if not completely remove, the extreme pain created by the urine flow? I even mentioned the idea to my gyne oncologist who did the procedure - that being the idea of some kind of protective covering that could be used at bathroom visits, but she hadn't heard of anything like that - yet. And, I must mention, she is the most consoling, compassionate and qualified doctor I have been fortunate enough to be referred to.

So, that doesn't mean it couldn't be created, esp. for a woman's vulvar anatomy, but maybe those of us who find we need something like that in the future will have to "craft" it out of a silicone sheet ourselves - just be sure to use sanitized scissors! 🙂

I will next look at your link, and also hope to see if it includes legitimate source/s for therapeutic silicone gel sheets.

Again, thank you so much! Best wishes to all, and happy to share experiences, and resources I've found along this journey.

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Replies to "Thank you so much for this @triciaot !! This is a really inventive, creative idea! I..."
Rubyslippers | @triciaot | Jun 12 9:56am

Quick comment -
The gel sheets may or may not stick to the vulva area - it should on the labia majora, maybe the labia minora- but not sure about the mucous type skin of the vagina. We might have a lot to learn from burn patients and their recovery process.
I was even wondering whether liquid bandage might form a layer that would protect from the urine?
As a long time camper - who tent camped for umpteen years - we had started using pee jars to make night time bathroom trips easier. A pee jar might be an empty plastic mayonnaise jar or peanut butter jar, held against the vaginal labia to catch the urine, then capped and thrown out. The urine, though, still gets the vulva area wet.
I wonder if you could devise a much smaller urine diverter, devised to fit your body’s structure and urethra. If you’ve ever gotten a close look at the urethra opening it’s really small - and maybe it’s possible to hold a tube against it to direct the urine away? Maybe? I’m thinking a 1” plastic tubing with something like Sugru around the edge to soften it (Sugru is silicone putty, hardens to soft touch, non-toxic, adheres to most surfaces - need to check the type tubing you’re using - and washable, get it at major hardware stores). The problem is you have to get your hand down there every time you pee, and the tube would need to be washed after each use. But if skin integrity is a long term issue, it might be worth it? Maybe?
Sorry, gotta go for now.

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