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Underwear options when lichen sclerosis flares
Autoimmune Diseases | Last Active: Jun 15 4:56pm | Replies (35)Comment receiving replies
Right on!
Just a caution - for my peace of mind, and maybe some others - May I suggest going forward we not even raise the MISconception of what others may think LS is...because it ISN'T; it has nothing to do with anything other than (and this is the SERIOUS, lifelong part) a long-neglected, minimally-researched skin condition that has no cure at the present time, and can lead to cancer.
Thus, it is not communicable, and there is no responsibility for this condition that can be placed on those living with it.
I know you understand, and - if I may - I think you agree: I just want to not perpetuate misconceptions by repeating them beyond what's been commented on here so far. 🥴
Though I might've worded this more awkwardly than I'd like, I hope - and I think - the message is one all that who do - or will - face LS will appreciate.
My warmest wishes to you, and looking forward to sharing more on this most welcome, and important, forum.🤗
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Thank you brandysparks for the clarification. I hope I did not imply LS is anything other than what is suspected to be an autoimmune condition; if I did I apologize. I am a retired medical provider so I understand. But, I am also always surprised by how many people (including women's health providers who have never had to manage a patient with LS) haven't even heard of the condition. I probably would have no clue what LS was if I did not have it myself. It's not necessarily a tabletop discussion topic aside from those who have it, know someone with the condition or take care of those who do. So the general ignorance on LS is understandable. Too many people (men get LS too) have no idea what they have until the condition is so unbearable that they finally seek out help & get properly diagnosed. I am so grateful for forums like these so we can share experiences, advice, love & support with each other. Hugs to all.