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@gamaryanne

I would add only that one should discuss radiation with several sources. And do ask about the long term effects of radiation if you are stage IV and realistically will face reoccurrence. Radiation in some areas can limit treatments later. I am keeping it in my back pocket for sure but not rushing towards it.

@markymarkfl -you make such a good point! We need to be watching our numbers. Doctors are typically reacting only once we leave “normal range”. Trends are very important and can allow us to take proactive measures. We need to bring these to the attention of our doctors and not wait for them to alert-they often have many other patients that are in worse shape than us.

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Replies to "I would add only that one should discuss radiation with several sources. And do ask about..."

This is very true regarding CA19 in normal range. Mine has gone from 16 to 22 to 23 and Mayo isn't concerned because it's "normal". Yet I am documenting the trend and anxiously awaiting my next scans and labs.