Thank you for confirming that this a real issue that more than just one unfortunate woman is experiencing. We need voices like yours & mine to encourage providers to gain education as to how to treat us in the most effective way & to encourage corporate producers of incontinence management products to know their consumers' needs more fully.

Thank goodness there medical management options available...none are really great tho. Lichen sclerosis has been around for a while...as long as many STD's/STI's...and is treated much the same..."we don't talk about that". Because of the stigma of LS & many other issues that women experience, these are not topics that are discussed freely. Lichen sclerosis is suspected to be an autoimmune disease, but that does not make its name any less frightening to the uneducated/uninitiated.

If we want real answers, we do need to ask real questions.

I look forward to hearing both questions & answers while participating on this forum.