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Treatment Guidance Please...Bronchiectasis/Asthma/Reflux

MAC & Bronchiectasis | Last Active: Jun 13 8:45am | Replies (13)
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@egayle187

narelle23... It is discouraging when the medical professionals assume noncompliance is the answer. I have found that some people are more compliant than others. I have always followed my asthma protocols, but my asthma symptoms do not abate. My pulmonologist believed acid reflux was the cause. I follow all the acid reflux protocols, too. I continue to have asthma and bronchiectasis symptoms. I cough up mucous. A small hiatal hernia has been fixed with surgery twice along with fundoplication twice. I got instant relief. Now I've been diagnosed with chronic gastritis and a small hernia. No surgery recommended since it is small.
Many people have better treatment from the Mayo Clinic and the other major clinics which specialize in treating NTM. A change in doctors might be warranted.
When you refuse asthma medications which reduce inflammation, you are setting yourself up for being considered noncompliant. Perhaps you have serious reasons that you could share.
We all are interested in helping you in your struggles for better lung function. Check out the other posts.

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Replies to "narelle23... It is discouraging when the medical professionals assume noncompliance is the answer. I have found..."
narelled23 | @narelled23 | Jun 12 7:47am

Thank you epaulettes for your response. My reasons for not using the asthma meds was that they didn't seem to do anything helpful along with their perceived negative side effects. When I started the Lung Matters protocol my feelings about the steroids were confirmed by them. The trouble is of course I am not a doctor and don't have the full story...and I guess I am naturally wary of the reliance on medication. Perhaps there is a good reason to take it...but no one has explained the way it is meant to help me.

Here in Australia we have general practitioners (GPs) who we see day to day...and when needed we are referred to specialists. Often you don't get to see the experienced consultant but their Registrar. They often don't have access to your full medical history...and usually don't explain why you need to comply with their recommendations.

I am open to being convinced. I have made an appointment to see an older GP who I used to see and trust to see if he can give me a convincing plan forward.

I also don't know if untreated (pretty asymptomatic) asthma could cause a 25% drop in lung function.

Thank you for your input.

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