I am at Day 63 post-transplant. I finally got back to work today. I will review with HR at the end of the month for the future.
I do not have disability at work, so I finished every medical hour i received. 2 Months' worth of time.
Let me say I had my weekly checkup today. I saw my usual NP. the Dr I do not see as often. I suppose i see him every few weeks.
I am doing well so far. The NP says very stable and very good at this time. My red blood products are just under the minimums. White cells, Platelets and Neutrophil's are good. Those they are most concerned with. I have another bone marrow biopsy at 100 days. We will then see if my donor remains 100% of me. I sure hope so.
I am so grateful I got to have this transplant at this time. My friend as my caregiver at her house, my older brother and sister carry for my house and cats. My sister gives my brother direction. Older sisters. Sometimes bossy. I say nothing as I could never have had this transplant without all 3 of these people.
I hope all people with MDS have doctors who listen. For me, I had a gene mutation, a pill like Lynparza i took for a year that has side effects with blood. A number of factors. Low-Medium rating for me. I had a very good chance of developing ALS. I did not believe a watch and wait was good for me. We must weigh out all factors. Coming to this site will give you every question you need to ask. Is a transplant necessary for me to lead a long life? What do you want? Above all else, know I will support you at any point on this journey-Katgob