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Stage 5 kidney disease and PD surgery

Kidney & Bladder | Last Active: Jun 11 8:40pm | Replies (7)
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@ckdcaregiver

Hi Ginger. Do you find it uncomfortable having the excess fluid in you all day? Do you do exchanges during the day or overnight? My sister was told it is like having 12 lbs of excess weight in your belly.

Is there anyone in the group who is doing home dialysis who is also wheelchair bound and uses diapers? Wondering if that would be a challenge with the extra fluid in the belly?

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Replies to "Hi Ginger. Do you find it uncomfortable having the excess fluid in you all day? Do..."
Ginger, Volunteer Mentor | @gingerw | Jun 11 5:57pm

@ckdcaregiver I do two exchanges a day. I don't use the machine, I use the manual method. I "dwell" the fluid for about 3 hrs each time, then drain it out. Basically, I dwell a 2000cc bag in my abdomen first thing in the morning, then drain it after 3 hrs. Wait about 2-3 hrs, and repeat.

@kamama may have some thoughts for you about dialysis while in a chair, but I think she was on hemodialysis.

The challenge I have is it is not very user friendly for doing much physical work while dwelling. Like pulling weeds or yardwork. Or painting.
Ginger

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