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Autoimmune diagnosing problem

Autoimmune Diseases | Last Active: 3 days ago | Replies (225)

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Profile picture for DogMamaT @dogmamat

John, thank you so much. I do run low with blood pressure, but I also take calcium channel blockers and beta blockers (Raynauds and migraine prevention respectively). One doc owned most historically, but now pain meds under Primary care, Rheum meds under Rheum, Gastro, Kidney under respective providers. So i keep a list broken down by owner and what each med is used for...I dont like this.

Rheum used to be quarterback...but he checked out, then went out of network and I was left hetting worse. He told me he didnt do well with pain. So I moved. When I called to say I was moving care, ther was no response, so I took it that was what they wanted.

I actually had a diagnosis of dysautonomia in 2005. I had POTS, went thru tilt table test, etc.

I do get faint. BP about 100/60, but has been as low as 89/60. After discectomy and fusion in my neck, it wast 50/30...

My A1C is 5.1-no sign of diabetes.

I am wondering if I have some other disorder altogether. I have muscle fatigue that is unbelievable. I cant handle 2 steps into my house. I have to pull myself in ising the door. If I dont take that prednisone on time I get the shakes and feel faint.

Who knpws what the right amount is. Who knpws if myvadrenals were bad before all my meds-no one ever checked...

I have been thinking going tp Mayo or Johns Hopkins.

I am hoping neurologist may help. He sees how week I am...he doesn't try to ignore

Gotta give a chance...

Thank you lots for thoughts..

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Replies to "John, thank you so much. I do run low with blood pressure, but I also take..."

@dogmamat Go to Mayo. Great institution. No one could help me in the state of Washington with trigeminal neuralgia. Mayo in Rochester did.