Who do I ask? I already asked my primary care doctor.
I live in coastal Alabama, so the Mayo Clinic in Jacksonville looks like the closest at 400 miles away. There are local doctors that treat MAC, but they use the same doctor I’ve already seen. I had switched to the University of South Alabama for my last treatment and that was going out of my comfort zone over an hour away. I was impressed at first, they had me getting a bronchoscopy within days, but the communication with the physicians was difficult. My ID doctor called to see how I was doing on my meds and I told her I still didn’t have a PICC line!! That’s when she asked if I had my Arikayce that my pharmacy can’t fill. Lost all my confidence.