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DiscussionShould I take Big 3 + inhaled ARIKAYCE
MAC & Bronchiectasis | Last Active: Aug 5 8:40am | Replies (144)Comment receiving replies
Replies to "Thank you, I did see that as a possibility. My ID unfortunately had no clue about..."
I also have M. Abscessus. ID doctor says it’s more difficult to treat than MAC and is faster growing. I started with Arikayce, Azithromax, and Omadacycline last October. All of my cultures since then have been negative. I think Arikayce helped, but I ended up in the hospital the second month. They thought Arikayce was responsible so they took me off. In its place I’m taking IV cifoxican. I know the problems you’re talking about. Dosage is twice a day. I do those myself at home, but I have to have a nurse each week for blood draw and dressing change. Medication comes from a specialty pharmacy, but they have to sub contract nursing and they charge me for supplies as they cannot bill Medicare for them. Finally arranged for the ID doctor’s infusion clinic to do the weekly visit, but I have to go there, Not bad since Medicare covers and it is only once per week. The supply charge was $120 per day! Pharmacy finally got me a program that pays 70%. You just have to keep asking and pushing.