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← Return to Very High Ferritin (Iron) Level over a Decade after Kidney Transplant
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Very High Ferritin (Iron) Level over a Decade after Kidney Transplant
Kidney & Bladder | Last Active: Jun 14 10:33pm | Replies (9)Comment receiving replies
I am going on 19 years post pancreas transplant (long time ago!). Early on I was referred to a hematologist (don’t remember why). When I met him he declared “we need to take a trip to the blood factory”! By that he meant a bone marrow biopsy. I got that done and the good doctor figured out what the problem was and a beneficial treatment. I’m telling this because a hematologist might be the best provider to figure out this high ferritin level and what to do about it.
Secondly it is important to have a good working relationship with your primary care provider (PCP). I’m sorry you had a bad experience with your father’s care. Could you ask the transplant provider &/or the nephrologist for referrals to a new PCP and a hematologist? It is important to get the primary and specialists you need collaborating and on the same team.
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Thanks for sharing, and cheers to your continued recovery and good health!
I 100% agree about having a strong and collaborative relationship with a PCP and between the PCP and specialists. Honestly, I had just let my parents manage their care, and their PCP was fine until my dad suddenly got very ill. We haven’t been able to get over the way his doctor managed it and how dismissed we felt when we asked for help. Shortly after, my dad had a severe stroke.
That was about two years ago, so my mom and I have been trying to keep our head’s above water, only managing what’s immediately in front of us, so finding a new PCP didn’t get prioritized.
And so now here we are… I love my PCP and she’s very comfortable with “conplex” cases, which is what we need. I see her tomorrow and am going to see about establishing my parents with her and if not ask her if she has any recommendations. I’m hoping she can see my mom sooner, or at least within the similar wait time we’d have for her current PCP.