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Age 82 and eGFR of 9 - options?
Kidney & Bladder | Last Active: Jun 12 7:18pm | Replies (32)Comment receiving replies
Hi Ginger. Sorry if this is a dumb question. How do I go about getting a team meeting? Her oncologist is with MSK while her kidney specialist that we have seen only twice is with Cornell. She was hospitalized with high potassium at NYU and have seen a specialist there once a few weeks ago. I’m so confused and scared. I want to ensure she has the best opportunity to extend her time BUT I don’t know how to best help her. I feel as if I’m going in circles - hamster in a ball. This is the first time I’ve reached out in a support group - I’m so lost. Thank You.
Replies to "Hi Ginger. Sorry if this is a dumb question. How do I go about getting a..."
@ckdcaregiver See @cehunt's response, getting in touch with a hospitalist, or social worker. They might be called a patient advocate. Or case manager. Be adamant but be proactive. It's not easy to do, and I get that.
Ginger
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@ckdcaregiver I too want to add my welcome to you. @gingerw is on to a very great idea (team meeting). Unfortunately the players involved come from several facilities. Is there a social worker, patient care coordinator or some other titled professional at the facility where your mother is currently? This would be the person who could potentially arrange such a meeting (because they coordinate things on behalf of the patient and family). Most facilities have such a position and that person is responsible for setting up this type of meeting, review, care conference …etc. I used to do that in various facilities when I had various titles and wore various hats. It can be tedious getting the hang of the particular lingo used but make calls, ask questions. Sometimes the squeaky wheel does get the oil. My thoughts and prayers are with you and your mom as you negotiate on her behalf.