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Autoimmune diagnosing problem

Autoimmune Diseases | Last Active: Jan 29, 2022 | Replies (223)
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@wesbig

I have been going to doctors for years, being treated for Hasimotes disease. Everything was cool until the last few years. I am being plagued by fatigue, joint aches lesions in the mouth and tinnunitis. I have been to two rheumatologist, both said I have and autoimmune disorder, but don't know what. I am currently on Plaquenil for the last month with no relief. My question is how long does it take to get a diagnosis.

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Replies to "I have been going to doctors for years, being treated for Hasimotes disease. Everything was cool..."
JohnWBurns | @johnwburns | Jul 20, 2016

Disease modifying drugs like plaquenil can take months to provide any relief. As far as what autoimmune disease that you may have, did you get a summary of what tests were run? The main things they'll look for with systemic involvement are Lupus, Rheumatoid Arthritis and possibly Sjogren's if you report dryness. Here is a link to something about autoimmune diseases that seem to cluster with autoimmune thyroid disease:

http://www.ncbi.nlm.nih.gov/pubmed/20103030

This calls out a couple more:

http://www.medscape.com/viewarticle/760417_3

But please don't start thinking that you have everything. Its a process of exclusion and can take months so try and be patient. Since you are being given plaquenil I might guess that they think that you have Lupus but some fairly common antibody tests would confirm the what the trend is.

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Kimberly | @sebley12 | Aug 16, 2016
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helloshelly7969 | @helloshelly7969 | Sep 21, 2016

Thank you for posting this info. It is a hopeful message and an acknowledgement that I am not alone. I wish you a great day!

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