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Brie (@brie87144)

Autoimmune diagnosing problem

Autoimmune Diseases | Last Active: Dec 4, 2018 | Replies (211)

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@wesbig

I have been going to doctors for years, being treated for Hasimotes disease. Everything was cool until the last few years. I am being plagued by fatigue, joint aches lesions in the mouth and tinnunitis. I have been to two rheumatologist, both said I have and autoimmune disorder, but don’t know what. I am currently on Plaquenil for the last month with no relief. My question is how long does it take to get a diagnosis.

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Replies to "I have been going to doctors for years, being treated for Hasimotes disease. Everything was cool..."

Disease modifying drugs like plaquenil can take months to provide any relief. As far as what autoimmune disease that you may have, did you get a summary of what tests were run? The main things they’ll look for with systemic involvement are Lupus, Rheumatoid Arthritis and possibly Sjogren’s if you report dryness. Here is a link to something about autoimmune diseases that seem to cluster with autoimmune thyroid disease:
http://www.ncbi.nlm.nih.gov/pubmed/20103030
This calls out a couple more:
http://www.medscape.com/viewarticle/760417_3
But please don’t start thinking that you have everything. Its a process of exclusion and can take months so try and be patient. Since you are being given plaquenil I might guess that they think that you have Lupus but some fairly common antibody tests would confirm the what the trend is.

Thank you for posting this info. It is a hopeful message and an acknowledgement that I am not alone. I wish you a great day!