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Age 82 and eGFR of 9 - options?

Kidney & Bladder | Last Active: Jun 12 7:18pm | Replies (32)

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@gingerw

@ckdcaregiver I have been reading your posts and the helpful comments/responses by several fellow members.

First, welcome to Mayo Clinic Connect. I am glad you feel comfortable sharing the dilemma your mother is facing.

If this was my situation, I would ask for a "team meeting". That is, your mother, her doctors and specialists, and you all together to discuss the best options. She has particular circumstances, being chair-bound, with additional health concerns. Making sure her team understands her preferences, and listening to their feedback, may go a long way to making decisions for her care. I am so surprised to hear she does not have a nephrologist on board. Being realistic and understanding the nuts-and-bolts of the situation is critical, in my opinion. Without some type of immediate intervention, if her kidneys continue to fail, her life expectancy becomes short. Her organs will begin to be compromised past a point where they can be stabilized. It is my thought that time is of the essence.
Ginger

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Replies to "@ckdcaregiver I have been reading your posts and the helpful comments/responses by several fellow members. First,..."

Hi Ginger. Sorry if this is a dumb question. How do I go about getting a team meeting? Her oncologist is with MSK while her kidney specialist that we have seen only twice is with Cornell. She was hospitalized with high potassium at NYU and have seen a specialist there once a few weeks ago. I’m so confused and scared. I want to ensure she has the best opportunity to extend her time BUT I don’t know how to best help her. I feel as if I’m going in circles - hamster in a ball. This is the first time I’ve reached out in a support group - I’m so lost. Thank You.

I am so grateful for all the comments I have received. Thank You All!