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Should I take Big 3 + inhaled ARIKAYCE

MAC & Bronchiectasis | Last Active: 3 days ago | Replies (104)

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@silverlinda

How can anyone afford Arikayce reading one post that is on Medicare which is what I'd be on was 6000.00 a month!

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Replies to "How can anyone afford Arikayce reading one post that is on Medicare which is what I'd..."

My aarp uhc part D does not cover arikayce but Wellcare part D does

Before I was prescribed Arikayce my first ID prescribed Zyvox as one of 3 and the pharmacy wasn’t filling it. I called and asked what the hold up was. It was $900 a month, my insurance didn’t cover. I found a coupon for $120. Ended up having a reaction to Imipenem IV and all meds were stopped first day. Wasted money.
Next ID prescribed Arikayce with iv Tigecycline and Bactrim. Again not being filled. She didn’t know it was a specialty drug and when I looked up the potential cost it was over $16,000 a month!! The IV med $600 ? A month.
I just threw in the towel. How do I find a competent doctor and affordable treatment? I’m a retired RN and thought I knew how to navigate the system. I’ve already had 3 IV lines. First two when they thought I just had pseudomonas. Then a PiCC line for Absessus that I used one day!!!!
Sorry I hijacked your post, but how do we afford this? When I’ve tried for help with Eliquis I am always just enough over in income to disqualify me. Same with Forteo for osteoporosis.

I was diagnosed with MAC twice (and likely have it again) and used the big three plus arikayce and was on a scholarship program with the company. I just paid for the oral meds thru my Medicare advantage plan.