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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 4 days ago | Replies (323)Comment receiving replies
@brandysparks - Oh, 40 years of LS & now VIN II/III. What a nightmare but thankfully the laser plasma jet helped! Hopefully no more VIN. This condition can get frightening.
Thank you for your input on Clobetasol & seeing gyne oncologist. I was surprised to find a few in my city & will call to see who takes LS & do biopsy if needed. I do have autoimmune Hashimoto thyroiditis & another rare autoimmune condition in remission (🙏). Plus in 2017, the rare Trichoadenoma (not STD) which might be genetic, and I used Clobetasol then. I’m glad to hear it didn’t cause thinning in your case.
I’m thankful to see all the information on this site & I’m still trying to absorb it all! Thanks again for your valuable info from your actual experience. Much appreciated & good luck to you! 🍀
Replies to "@brandysparks - Oh, 40 years of LS & now VIN II/III. What a nightmare but thankfully..."
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@kewp - You are most welcome!
Best wishes with your autoimmune conditions...
Glad to hear you've already taken action to locate a gyne oncologist - they should be familiar with LS, especially if they're at/affiliated with what's called a "teaching hospital" (I understand they tend to more current on R&D, etc.).
Also good to hear you've found this site to be helpful - it really is, in so many ways, and for so many subjects (as many of us seem to have multiple circumstances to contend with any more)!!
As always, if I can be of any further insight in terms of shared experience, let me know, and keep checking in on this site, and feel free to ask questions if you don't see them addressed on the MayoClinic site, too!
Warm wishes!