Hi, Ruth,
Are the infusions helping? I have axial spondylitis and have ankylosing at one level currently. I also have ligaments that have hardened which is another symptom of ankylosing spondylitis.
I currently use Enbrel, a biologic, once a week. I was diagnosed two years ago but have been suffering from AS and psoriatic arthritis for around 35 years. I do have lots of experience and medical knowledge of our disease.
My AS has been very active over the past 7-8 months. My rheumatologist is struggling to find the right biologic for me. In the meantime, my hips, especially the left one, SI joints and low back are really flared up. I seem to have new damage but we'll see for sure when I have my next MRI. Like you, I'm having more bad days then good.
I usually have good mornings once I get moving. But after a while, my back muscles get so tired and stiff from all the inflammation. I always have to get out my heating pad in the early afternoons.
I'm currently also doing physical therapy and I've joined a pool class for people with arthritis that runs on Tuesdays and Thursdays.
I hope you are having one of the good days.
Hi Alisamichelle, I am enjoying a good day, thank you! My infusions have given me some much needed relief from chronic pain! Before being diagnosed I had 2 lower back surgeries! Bulging disc, my doctor called it a Laminectomy! I am very active physically and socially!
My biggest problem seems to be my lower back and left hip and down my leg! Unlike you, I can feel this when I wake up also run low grade fever and feel absolutely awful! Usually do not do much because of this!
Luckily for me, I am at an age where it is ok to stay in my pj’s and rest! My friends understand and are supportive!