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Osteoporosis treatment post transplant
Osteoporosis & Bone Health | Last Active: Jun 11 11:40am | Replies (4)Comment receiving replies
I was on Fosamax and could not tolerate it. Endocrinologist then said Reclast. I raised hesitation since it would be in my system for a year and my kidney function is just okay. So, then she and Transplant said Prolia. Were you ever on Prolia? I'm not sure why the other drugs weren't offered as an option. I asked the Endocrinologist what happens after Prolia, she remarked Reclast. I don't understand that as it would be rare for my kidney function to get better in time, and it's harder on the kidneys. It would be nice to hear from someone who has had good experiences with Prolia. Are they out there? Does this site offer doctor recommendations?
Replies to "I was on Fosamax and could not tolerate it. Endocrinologist then said Reclast. I raised hesitation..."
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Maybe your DEXA scan scores are mild and the doctors are thinking only of Prolia and Reclast. But in the situation of a kidney transplant it seems insurance would cover Tymlos, Forteo or Evenity. Some people have good experiences with Prolia..it's just that you lose everything you gained when you stop unless you do Reclast (or Fosamax if you only do a few Prolias).
I could not tolerate Fosamax. Tymlos has been the only one I could tolerate and it works really well. I am doing only 1mg of Reclast, which is 20% of the usual dose. You could even do 10% to spare your kidneys. IV hydration and slow infusion. No matter what you do it seems you will need Reclast Fosamax or possibly Actonel- all similar. We are are in a bind!