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Good morning, @andyjustin. On reflection, I can see how I may have had a bit of a leg up when it came to retirement, transitioning from one time of life to the next. Mine was never a career that offered a formal retirement; instead, in my line of work, practitioners most often continued working for as long as they felt up to it (until, as we'd sometimes would tease one another, we fell over on the commissary line 🙂 ). I'm fortunate in that–even with the considerable adjustments I've had to make for my PN–I'm able to continue working, even at 79 and in several unavoidably modified ways. (For what it's worth, I, too, have my bad days, They occurred more frequently in the months following my diagnosis; luckily, they're fewer now–fewer, but I still have them.) –Ray (@ray666)
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Mornig,today is Thursday and inthe last week I have developed new symptoms incredible pain from try myalgia. This is a new symptom. I have never known pain like this before and I when I say that I know pain I have broken multiple bones in my life I’ve had to go through withdrawals from painkillers, cold turkey, but nothing compares to the searing pain of tri myalgia. I usually take roughly 1800 mg of gabapentin every day which is which is twice as much as I started a year and a half ago. My symptoms are exponentially getting worse and medicine or should I say the medical profession has no answers I have met people who have had the surgery to leave the symptoms of tri myalgia and I am not willing to do that plainly my long-term prognosis says I have no long-term so now I am busy trying to figure out how I can settle the future for my wife And adult children instead of mine it’s a bitch. I still remain hopeful these new symptoms affecting me wil pass and at least give me a break until they return or they manifest themselves in another way, I am very pragmatic about my situation. I’m still doing everything possible such as great diet. Great supplements, daily workouts support from my friends, but the hits keep coming staying positive. But nonetheless, living with my reality and the reality of my situation You know it’s not really just a question mortality it’s the question of being able to tolerate losing control of The body that was gifted to me