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Tymlos and Elevated Blood Calcium Scores
Osteoporosis & Bone Health | Last Active: Feb 5 1:39pm | Replies (28)Comment receiving replies
The connection, or lack thereof, between serum and urine calcium is concerning since many of us are not getting our urine tested! Is there any info on whether Evenity lowers urine calcium? Is there treatment (diuretic?). Does D3 increase urine calcium? I have a lot of questions but at this point I am off both Tymlos and Evenity so this concern is for others! Some on this thread seem to know about this issue of urine calcium and I hope to learn more.
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I have asked my endocrinologist over and over if my hypercalciuria will blunt the effect of Evenity, and she really can't answer. She just thinks Evenity "will still help." I found out too late that everyone should have a 24 hour urine calcium test before starting Tymlos, as Hypercalciuria is a known side effect of the drug since it stimulates the parathyroid. I switched doctors and the current one did the urine calcium 3 months into Tymlos and my number was a whopping 518. At baseline, after stopping Tymlos, it's 273. Still too high-not terribly so, but it gives me the diagnosis of Idiopathic Hypercalciuria. I hope everyone is at least getting their parathyroid checked before starting Tymlos or Forteo. I always feel like I have to be my own doctor, and it's stressful.