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Desmoid fibromatosis found in breast of 19 year old female

Cancer | Last Active: Jul 1 11:07pm | Replies (12)

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@windyshores

I had to read about this kind of tumor https://www.mayoclinic.org/diseases-conditions/desmoid-tumors/diagnosis-treatment/drc-20446388

So it is non-cancerous in the sense that it does not spread to other parts of the body, but can grown where it is located and affect organs. Surgery, radiation and chemo may be used. It says that if it has grown to involve organs, some tissue may be left during surgery and those other treatments might help.

I don't know if anyone can chime in with actual experience. You might also try breastcancer.org, to get more opinions.

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Replies to "I had to read about this kind of tumor https://www.mayoclinic.org/diseases-conditions/desmoid-tumors/diagnosis-treatment/drc-20446388 So it is non-cancerous in the..."

I know a person who is doing well aprox 3 years post operative after surgery for removal of an abdominal Desmond tumor. Surgery was followed by chemotherapy. She’s had regular PET scans that have all been clear.