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Severe Tortuous & Redundant Colon
Digestive Health | Last Active: Nov 25 4:47pm | Replies (99)Comment receiving replies
One surgeon indicated that my hemoglobin level is WNL with a GI bleed and I’m asymptomatic… but the wretched vomiting that I experienced was dismissed. The hiatal hernia is VERY uncomfortable now. And the belching I’ve experienced is difficult at times even with omeprozole bid. I’m being monitored also by a hematologist and I’d have to continue with iron infusions if needed. The many years of dealing with constipation contributed to the hernia. It’s pressing on my lungs and I’m asthmatic and wheezing and SOB occurs. The whole mess has robbed me of my quality of life. The 2nd surgeon didn’t see that ulcers were noted on the endoscopy and dismissed that the procedure was technically complex and difficult due to the abnormal anatomy of my upper GI. Hershey Medical Center is a 1/2 hour away and I’m in the Penn State Health System. Even went with a new PCP because the undiagnosed anemia began in early Fall of 2023. The pulmonologist I saw on 2/28/24 saved my life
Replies to "One surgeon indicated that my hemoglobin level is WNL with a GI bleed and I’m asymptomatic…..."
mrd, when you have the time and energy would you please clarify the following from your post:
1. What is SOB
2.your hiatal hernia, is pushing on your lungs. What does it feel like? What imaging showed the hernia pressing on your lungs?
3. Too difficult procedure: what procedure? What procedure and if you ignored the dr. , would you have this procedure? Second surgeon, what was your first surgery ?
4. How did your pulmonologist save your life?
5. Where are the ulcers? What do they feel like? Should they be removed?
6. Years of constipation...what caused this? Is it ok now?
7. How was your GI bleed caused and diagnosed? How can it be ignored?
I have many of the same issues: iron deficiency anemia and must use infusions, due to celiac disease severe damage in small intestines so malabsorption will be a problem forever, 17 years of CIC💩‼️, all GI treatments useless. I use miralax at high doses for many years (okay w/GI), to keep 💩 quite un-thick, thin mush to diarrhea. I know I asked a ton of questions.... I am getting nowhere. 17+ years of fighting, I have literally almost zero energy to keep up fighting. Thanx ShelleyW
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@mrd, I suppose you've tried lifestyle changes to deal with some of the symptoms. I'm thinking of eating less fatty food and keeping the head of your bed elevated at night? Also, in order to be more comfortable, exercise might be a good idea in order to deal with any excess weight that might be contributing to the hernia discomfort.
Here is a link to a discussion on Connect about hiatal hernia, as you read the posts perhaps you will find suggestions that might help you deal with at least one of your many symptoms:
https://connect.mayoclinic.org/discussion/hiatal-hernia/
As you read the posts in this discussion, feel free to hit "Reply" and ask any questions that might be helpful. Since you are dealing with many different problems, it might be good to tackle one at a time.
Will you post again with an update?