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Grade 1 Non-functioning (NF) NET
Neuroendocrine Tumors (NETs) | Last Active: Jun 11 1:56pm | Replies (45)Comment receiving replies
Hi @pavlina60! It's great to hear from you about your journey. I have found that physical activity is the most helpful for me and do also follow a low carb diet (nuts, veggies, meat, etc. - I have also learned to love cauliflower in all of its forms - riced, mashed, etc.) The other thing that I found with Creon is that the fat content of the food can affect the glucose spikes - more fat = slower absorption and lower carb impact over time.
I would be surprised if your Doc would order a med for your A1C of 6.6. My endo's goal for me is to be 80% in range of 70-180 daily and 180 is about a 8.0 A1C so I would think you are doing great! If you have a CGM, perhaps you can experiment on food/activity level to dial in your target?
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Hi, @matt2024 ! Thank you for reaching out! I am "almost"vegetarian- very little meat and ear mostly fish, sardines, some chicken, chickpeas, lentils and bean plus lots of veggies. I am carefull with those as I am also on blood thinners ( coumadin) for two previous strokes. I keep fat to a minimum, even though I take Creon ( only 1×24000 with meals; my snacks are mostly fruits). I will follow your advice for more physical activity now that weather is getting better ( I live in Central New York State). My PC was concerned about the BG, and A1C. I have an endocrinologist appt next week, will discuss that with him. I know that between not having healthy pancreas to produce insulin ( and liver mets) and side effect of the Lanreotide it will be hard to control it. But I would like to stay away from meds as long as I can :).
Thank you again for your post! I will also strive to be the " healthiest cancer patient"
Hugs! 🦓💜