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Severe Tortuous & Redundant Colon

Digestive Health | Last Active: 1 day ago | Replies (95)

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@hopeful33250

Hello @mrd and welcome to Mayo Connect. I can understand your concern about taking care of these difficult health issues. You have already done a lot of waiting for a diagnosis and treatment and I'm sure more waiting is difficult to consider.

Please know that surgery is considered a last resort for most medical issues, especially if you have pre-existing conditions that might make surgery riskier. For now, you might consider moving along with the diagnostic tests that have been recommended.

Please know, however, that it is always your right to seek a second opinion. If you have not sought a second opinion, I recommend that you go to a medical facility that is multi-disciplinary such as Mayo Clinic (here is a link to appointment information: http://mayocl.in/1mtmR63) or a university medical school in your area. Medical facilities like these are best able to sort out hard-to-diagnose issues.

Have you considered a second opinion?

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Replies to "Hello @mrd and welcome to Mayo Connect. I can understand your concern about taking care of..."

One surgeon indicated that my hemoglobin level is WNL with a GI bleed and I’m asymptomatic… but the wretched vomiting that I experienced was dismissed. The hiatal hernia is VERY uncomfortable now. And the belching I’ve experienced is difficult at times even with omeprozole bid. I’m being monitored also by a hematologist and I’d have to continue with iron infusions if needed. The many years of dealing with constipation contributed to the hernia. It’s pressing on my lungs and I’m asthmatic and wheezing and SOB occurs. The whole mess has robbed me of my quality of life. The 2nd surgeon didn’t see that ulcers were noted on the endoscopy and dismissed that the procedure was technically complex and difficult due to the abnormal anatomy of my upper GI. Hershey Medical Center is a 1/2 hour away and I’m in the Penn State Health System. Even went with a new PCP because the undiagnosed anemia began in early Fall of 2023. The pulmonologist I saw on 2/28/24 saved my life