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Hormone Therapy Questions

Posted by bill12321 @bill12321, Sep 25, 2023

Dr. Google says ADT is bad.
Is there an option besides ADT for mid-grade cancer that has gotten outside the prostate?

If I start ADT, will it disqualify me from receiving other types of treatments?

Is the damage that occurs (bone/muscle loss) permanent or can the body recover from it if/when therapy stops?

Is there anything that can be done to prevent the damage from occuring?

Thanks,
bill

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mammoth3414 | @mammoth3414 | Jun 9 10:00am
In reply to @grandpun "Your real doctor should give you more info on the many ways to mitigate any side..." + (show)
@grandpun

Your real doctor should give you more info on the many ways to mitigate any side effects of ADT as well as any alternatives too ADT. If you don't get that, find another doctor.
For me, with mid-grade PC (Gleason 8) that escaped the capsule, ADT was my least favorite option with the same concerns as yours.
But after 18 months of Lupron I've progressed to being on a path to ending the ADT and have relieved the side effects.
I would also offer that "Dr Google" is a terrible source of info for making critical health decisions.
You might find good reference links there and find good questions for your real doctor; but otherwise IMneverHO Google (and Wiki) is just bad in this situation.
Plus, some manageable side effects are way better than chancing the progress of the PC.

Jump to this post

Been on Orgovyx for 3 months and xtandi for 1.5 months
Gleason was 3+4 10 yrs ago prior to have RP at ucla. Psa was 10 then
Psa began to rise to 3.6 2 years ago
5 SBRT treatments
Psa went to .6 but rose to .8 1.5 years later. 3 lymph nodes were involved. 2 resolved one shrank.
Psma showed new quite small pelvic lymph node which ucla felt was too small
To radiate
1.5 months after starting on Orgovyx psa .1 testosterone 6
Next labs are in July
Side effects: off and on mild fatigue
no libido
No weight gain
No hot flashes
No other issues
Cost of both meds after initial copay is 0
Exercise daily
Proper nutrition and supplements

REPLY
grandpun | @grandpun | Jun 10 7:57am
In reply to @edpenney "Dr. Stolz PCRI shares recent research Hormone Therapy. I found this helpful insight......and I believe a..." + (show)
@edpenney

Dr. Stolz PCRI shares recent research Hormone Therapy. I found this helpful insight......and I believe a credible resource for those of us looking for direction along the way! Here is the link: https://youtu.be/cyY0nHXvzGc?si=siBqoClcFEaKZroo Would welcome your comments!

Jump to this post

I liked the video. Sounds like good advice and insight based on more recent and reliable studies.
Since I didn't have radiation, just RALP, I did use Lupron. And it is/was worth it since I had a spot of PC on a rib.
I had the typical side effects. Worse of those was (is?) lower energy & strength. But with last shot 5+ months ago I think my energy is coming back. I can manage the hot flashes a bit longer.
Thanks for the good info.

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