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Neuropsychiatric Lupus

Autoimmune Diseases | Last Active: Jun 13 11:29am | Replies (15)

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@twinkie23

@yelsel I’m so sorry you’re dealing with the frustration of being told you have lupus, only to hear from another doctor that you don’t have lupus. I also experienced this many years ago when I had to switch doctors as my symptoms and bloodwork had fluctuated. The suggestion I have for you is the same that I did for myself. I went to a major medical teaching university to be tested. They took 26 vials of blood and did extensive testing as well as a complete physical exam, records review and symptom evaluation. Once they concluded that I indeed had systemic lupus it was never questioned again. Of course, I don’t know your personal situation or what teaching hospital may be available to you. I hope this gives you an idea of where to pursue a definite diagnosis. If there’s anything that I can help you with, please feel free to contact me.

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Replies to "@yelsel I’m so sorry you’re dealing with the frustration of being told you have lupus, only..."

@yelsel and @twinkie23, I'm not sure how current this is but it does list 66 teaching hospitals in Australia if seeking help at a teaching hospital is an option - https://en.wikipedia.org/wiki/Category:Teaching_hospitals_in_Australia.