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Severe Tortuous & Redundant Colon

Digestive Health | Last Active: Nov 25 4:47pm | Replies (99)

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@mrd

At 70 I have had an undiagnosed hiatal hernia that is now becoming giant in size. I developed Iron Deficiency anemia and my PCP dismissed my symptoms if I might be anemic. I was experiencing difficulty with my breathing and he prescribed prednisone to treat my asthma which is in my problem list. I didn’t get any improvement from the 2 courses of prednisone and nothing further was done until I presented myself with fatigue and the chills (They’re so focused on Covid) and a chest X-ray on 2/7/24 confirmed a hiatal hernia. I continued to see a cardiologist and my echocardiogram was good and compared to my baseline in May of 2020. Finally when I see the pulmonologist on 2/28/24 she orders a CBC and my hemoglobin was 9.7. Dips down to 8.9 on 3/20/24 which was the date of my first iron infusion. Saw the gastroenterologist on 4/2/24 and wanted to expedite the endoscopy and colonoscopy so a different provider did both procedures. The endoscopy was “technically difficult and complex due to the abnormal anatomy of the upper GI. I was diagnosed with “a somewhat torturous sigmoid colon” in September of 2009 from a CT scan with contrast. I awakened from the anesthesia and tried to hold back from moaning because it hurt so bad. I was very nauseous and dry heaving. The hiatal hernia caused a GI bleed and thus the anemia over time. The stool sample confirmed blood in the stool. I’m feeling very uncomfortable and symptoms that I had experienced during the middle of the night with wretched vomiting weren’t taken into consideration during my routine colonoscopy 5/17/22. I’ve been living with so much abdominal pain compounded by all that I know about my GI tract. Waiting for a surgeon to take me seriously and that’s been an awful experience just going to one. Many of the specialists/providers don’t know how to connect the dots. And now that I have confirmation of GI bleed I’m not going to move forward with the video capsule endoscopy. When is enough diagnostic testing enough ? I desperately need surgery for the GIANT hiatal hernia and the 3 iron infusions corrected the anemia but the GI bleed still is going on

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Replies to "At 70 I have had an undiagnosed hiatal hernia that is now becoming giant in size...."

Hello @mrd and welcome to Mayo Connect. I can understand your concern about taking care of these difficult health issues. You have already done a lot of waiting for a diagnosis and treatment and I'm sure more waiting is difficult to consider.

Please know that surgery is considered a last resort for most medical issues, especially if you have pre-existing conditions that might make surgery riskier. For now, you might consider moving along with the diagnostic tests that have been recommended.

Please know, however, that it is always your right to seek a second opinion. If you have not sought a second opinion, I recommend that you go to a medical facility that is multi-disciplinary such as Mayo Clinic (here is a link to appointment information: http://mayocl.in/1mtmR63) or a university medical school in your area. Medical facilities like these are best able to sort out hard-to-diagnose issues.

Have you considered a second opinion?