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MAC & Bronchiectasis | Last Active: 2 days ago | Replies (41)

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@1fancydancer

I have had Pseudomonas 3 times. Two times last year and once in 2012. I also had 2 other bacteria last year and a bout of Covid. In 2012 it took a year to diagnose. My lungs were pretty much shot at this point. I have no silica to move mucus thru my lungs. They are either deformed or destroyed. Have also had Burkhalteria 2 times, MAC and MAI since 2012. Trying to figure out how I keep getting these bacteria. I have figured out that Pseudomonus is in all of our kitchen sinks as well as medical facilities plus who knows where else. Burkhalteria comes from the water. Got that 2x and was told to put a shower filter on the shower head. I think that it either is in the water supply or comes thru the pipes. It is a very rare bacteria. I was told that no one gets that. I guess that I am the lucky one. MAC comes from dirt I think. I love to garden. Wear gloves and an N95 when gardening now always. I have been taking Azithromizen 3x a week for years to prevent that one from coming back. I have not had that one again. Appears to be working. Not sure where MAI comes from just an environmental bacteria. Trying to collect as much info as I can so that I can quit catching this crap.

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Replies to "I have had Pseudomonas 3 times. Two times last year and once in 2012. I also..."

I believe I may have picked mine up while cleaning out some bathroom drains. Should never have done that! If you have Bronchiectasis be careful around plumbing drains etc.

Thanks @1fancydancer for your information. Can you tell me how you got rid of the Pseudomonas in 2012 after having them a year? I had my infection for 1.5 years before I was treated with Cipro (10 days) and Tobi (2 weeks) which was about 8 months ago. It did knock back my infection but now a moderate growth has returned. It sounds like you have done well with yours. How did you get rid of them last year? Was it the Azithromizen? It would be grand if we could stop coming up with additional infections!!! I'm afraid our bronchiectasis just makes us so much more susceptible to germs taking hold.

Hello 1fancydancer, I too have Burkholderia cepecia colonized. What antibiotics did you take for it? How did you get rid of it. Please let me know, this bug has been giving me problems.