I am so happy that some have been able to get the help they need. Florida here as well. No help for me either. I’m 58 and I’ve been very ill for over 22 months and getting more ill as each day passes. My PCP on our monthly visits still asks, “ how’d it go with the infectious disease doctor”? My reply is, every visit, I haven’t seen one?
I’ve been waiting to see a infectious disease doctor for 16 months. My PCP was helpful in the first few months but since, I’ve been on my own. There is just no help. And because of this long wait, I have pretty much been home bound and now have 5 very serious conditions. It’s very scary. I had a history of good health up until 22 months ago, I cannot get into the Mayo Clinic until I get a referral from a infectious disease Doctor. It’s so hard knowing ,waiting, watching, as each day passes and no help.