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Tymlos and Elevated Blood Calcium Scores
Osteoporosis & Bone Health | Last Active: Jun 10 3:19pm | Replies (19)Comment receiving replies
Tymlos prescription information highlights high RCA Calcium scores as a Known, Serious Side-Effect in some patients. Nowhere does the prescription information mention that this serious side-effect is temporary in those patients. I did not have a high RCA Calcium score before taking Tymlos. I had been taking Tymlos for 18-24 months before my latest RCA Calcium score, which was above 300! I took Tymlos nightly before bed. My RCA Calcium score was measured on a weekday afternoon, 13 hours after my prior dose of Tymlos, so if its effect on RCA Calcium is short-lived (which is not referenced in any of the drug's literature), it had more than enough time to dissipate. I've never been over-weight, eat a very healthy diet and rotate both cardio and strength training at least 5 days/week. My Bone Specialist should have been monitoring my calcium levels, but didn't. Fortunately, my GP does. High Calcium scores can be present and people often don't know it. In my case, my Blood Pressure was normal and I had a low resting heart rate (in the 40's). My RCA Calcium score put me at a 5X greater risk for a heart attack, or stroke within a 5-year period and the only way I found out was thanks to my first-class GP and concierge physician. I contributed my post in the hope that other people taking Tymlos will make sure that their Bone Specialist monitors their RCA Calcium levels, or will request that their GP do it. I have stopped taking Tymlos and will be following up with my GP to determine when we will want to take my RCA Calcium levels again. My GP has also referred me to a new bone specialist.
Replies to "Tymlos prescription information highlights high RCA Calcium scores as a Known, Serious Side-Effect in some patients...."
RCA is a CT scan of the right coronary artery. A high RCA score would indicate levels of plaque accumulated in the cardiac artery. And is frightening for the risk of stroke and cardiac arrest.
Patients with high urinary calcium and normal serum calcium levels, in the main, are absorbing too much calcium in the intestine. This can happen in between doses of Tymlos because pth makes good use of D3. Pth is in the serum for 4 hours and in between the absorbed calcium is excreted through the kidneys. A person with hypercalicuria and normal serum calcium usually has a good parathyroid gland and is at greatest risk for kidney stones. Prolonged hypercalicuria poses additional risk for kidney function.
It would be unusual to have a second RCA CT so soon after a normal CALC score.
Thank you for the warning that saves others from the risk.
I'm a little confused about which tests you had. If you feel like clarifying, I'd know which test to take to protect myself.
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@wudalife2 I have seen the high calcium on the side effect list. I asked questions because a few others have posted about this serious side effect and having taken Tymlos myself with no testing, I was curious whether some of the reports of high calcium were from testing right after the injection, or after supplementation with calcium. Clearly neither was true for you.
I am sorry this happened to you! I have had intolerable side effects from every medicine except Tymlos, as far as I know at least. Noone did a urine calcium or a coronary artery calcium level on me during the two years of treatment. My blood calcium was always high normal at 10.3.
What exactly is an RCA calcium score and what is the range/ I get that 300 was high. Do you have treatment for this?
Your post is helpful. Most of us are not getting tested that's for sure.