← Return to Lichen Sclerosus: Any other women dealing with this disease?

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@2thfairy

@kewp yes, that’s a normal dosage of Clobetasol. My Phoenix urogynocologist also Rx Estrace 3xwk to be used on inner labia and figure 8 perianal region to help keep skin from thinning. You can always use Aquaphor in between times just to keep moist, and prevent injury to the tissue. Another cream I was Rx is Silver Sulfadiazine 1%, after a vulvar laser treatment. I use it on lesions that just don’t want to heal.

As far as seeing Dr Coyle, if you aren’t too far from him, I’d see him sooner than later. I first saw him when I felt completely hopeless and was amazed by his Tulip Procedure treatment and that he brought back my anatomy again, stopping the LS for a long while. I’ve had more than one treatment by him. It’s been 5 years since the last and I need to go back soon. (Last year my highly rated urogynocologist in Phx did two costly laser procedures with big promises and zero results. The LS was back in full force within 4 weeks. I won’t be making that mistake again.

I’m sorry you have this diagnosis. Just know LS IS manageable, and look to this forum for helpful ideas.

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Replies to "@kewp yes, that’s a normal dosage of Clobetasol. My Phoenix urogynocologist also Rx Estrace 3xwk to..."

Thank you for this Dr Coyle info! I do have some shrinkage inner labia & don’t want progression. I do use estradiol vag cream twice weekly & now spread it to outer area. That might be similar to estrace & I have to ask at appt. And the Aquaphor, yes. Silver Sulfadine will mention too. I did ask for biological estrogen, but she said that’s for hot flashes, etc.
It’s a shock to learn all about LS. I’m sorry yours came back after 5 yrs! And the local laser didn’t work. I wish you good luck with your journey on this difficult road! 🍀