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Solitary Fibrous Tumor: Anyone have experience with this?

Sarcoma | Last Active: Jun 18 4:26pm | Replies (14)

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@colleenyoung

@lazylynn24, it is encouraging to hear your story. I can hardly imagine dealing with a cancer diagnosis and treatment with a newborn. Am I understanding correctly that since surgey and 6 weeks radiation in 2018, your treatment has been active surveillance with regular scans? How do you manage scanxiety?

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Replies to "@lazylynn24, it is encouraging to hear your story. I can hardly imagine dealing with a cancer..."

Correct. Scanxiety is so hard. I do really enjoy art, so I try to start a project the week of scans/appts. My therapist (highly recommend one of those lol) told me to do something with my hands, art, crafts whatever. It gets your brain out of "active" thinking and gives it a chance to relax and recharge.
I clear my schedule, ignore phone calls. I make sure I'm listening to my favorite music and dance around with my kiddos. A good fictional book to take my mind off things.
As a woman, hormones can play a factor for me, during certain times of the month I'm way more anxious and my body is more sensative to pain. So if I can I try to schedule away from those times.
Journaling (and Im not a journaling girl!) But something about getting your thoughts on paper and out of your head can really help.