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Caregiver sundowning

Caregivers: Dementia | Last Active: Aug 6 2:23pm | Replies (42)

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@jan83404

Hi chris20! I could’ve written your post. After 4 1/2 years of sundowning, I called my stepson and told him that I needed a break. He’s coming Saturday to take care of his dad who has Lewy Body Dementia. I am going away for one week just to be alone and seek some real conversation! My normal get away is to hide myself in a book.

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Replies to "Hi chris20! I could’ve written your post. After 4 1/2 years of sundowning, I called my..."

Congratulations on your well deserved "vacation." I am very envious, sinful though that may be! I have been trying for over seven years to get someone to take my wife( their mom) for a week but they have adamantly declined saying they know about her separation anxiety and wouldn't want to insist and make her uncomfortable. I don't know how to get that vacation without going nuts and being sent to the looney bin. Just kidding.
Enjoy it, and good for you for making the arrangements, that certainly takes courage.

I hope you had a well deserved break and regrouped for the next siege. My husband has ALZ; but he has the 4-5p yen to go out; also after dinner. He also has hallucinations of people in the house. The family has been researching his symptoms and vote for the diagnosis of Lewey Body. When I told the neurologist about his symptoms and our suspicion, he said that ALZ patients do the same thing and no it wasn't Lewy Body. He said that LB patients pace and just can't sit or relax. Could you enlighten me on the subject. In the big scheme, I guess it doesn't matter what the disease is called; awful either way.