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Grade 1 Non-functioning (NF) NET

Neuroendocrine Tumors (NETs) | Last Active: Jun 11 1:56pm | Replies (45)

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@pavlina60

Great news, Scott! Are you having any treatment? Lanreotide/Somatuline? Thanks! Be well!
Pavlina

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Replies to "Great news, Scott! Are you having any treatment? Lanreotide/Somatuline? Thanks! Be well! Pavlina"

Hi, Pavlina,
No, nothing. After my surgery was over, I saw a specialist in PNETs in Portland and because I don’t have any tumors, he didn’t put me on anything. They thought about getting me into a chemotherapy trial for NETs but I missed the window. He wasn’t sold on it doing anything anyway.

They think I probably won’t have any reoccurrence anywhere, and every scan that comes back clean increases the chance that I might be done with cancer. That is my hope.

Scott