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Grade 1 Non-functioning (NF) NET

Neuroendocrine Tumors (NETs) | Last Active: Jun 11 1:56pm | Replies (45)

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@augustine777

Hi Ken,
I had a 5 cm PNET removed in March 2023. So, a year and a few months ago. It was grade 2-well defined. I had a distal pancreatectomy and splenectomy. I also had three of 10 positive lymph nodes. I was told to be careful with sugar and fat, I can’t say that I’ve been real faithful. I have not had to use enzymes, and my blood sugar is great. No diabetes. I am pretty much back to normal.

I have scans every three months with contrast and so far so good. No cancer in my liver at all so far.

Good luck with everything. To be honest, the surgery was rough, and it was a couple months before I started feeling normal again. But you’ll get through it. For me, it looks like they found it in time before it metastasized to my liver, but I will still get scans every three months for the first two years, then go to six months. I just had a brand new (first) grand daughter, so I’m praying for quite a few more years. 🙂

If you have any other specific questions, feel free to contact me.

Blessings,
Scott

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Replies to "Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and..."

Great news, Scott! Are you having any treatment? Lanreotide/Somatuline? Thanks! Be well!
Pavlina