@sadea0208
I am so glad that you finally found an amazing specialist and got long overdue help! It is encouraging to hear about positive experiences in the health field; they do seem to be the exception sometimes. I feel that way about the caring and helpful ENT who made such a difference in my life. Now I am hoping to find an equally caring and competent doc to help with the other stuff.

FWIW I'm beginning to view the symptoms that plagued me from an early age as "different" from the breathing problems I acquired in late 2019. The early symptoms were strange but not life threatening, compared to the later breathing problems which were acute and a crisis. My "best guess" is that I may have been born with some sort of auto immune problem and then maybe got covid, months before it was made public. I guess I have to add "brain fog" to the mix because just thinking about this stuff is as clear as "pea soup".

Yeah, I am retired too and think I would have made it through life "blissfully ignorant" were it not for the 2019 illness, as my early strange symptoms were manageable-especially when I know no different. The possibility of a dx (for the early stuff) really "rocks my world" as I made up reasons of my own, for all the strange symptoms, when it appeared that science had no answers. And now I may have to dismantle my "false beliefs". I sure hope it's worth it!! And, if it proves the "cure is worth than the disease" I may revert back to the "ignorant bliss". LOL