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Just diagnosed with DCIS: How do I know what questions to ask?

Posted by foreverfaithful0925 @foreverfaithful0925, May 24 10:04pm

Hello, I am hoping to find some comfort with the group.

I just got diagnosed with DCIS stage 0. I don't have the full details yet, just got a call (and I consented to get the results over the phone). I am scheduled to discuss it further with a surgeon and my doctor.

Any help is appreciated. I am so lost right now. I can research all day and night, but I don't even know where to begin.

Perhaps I could start by asking any tips on what to ask the doctors for my appointment. Any advice is greatly appreciated.

Keep the faith.

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christylv | @christylv | Jun 6 4:45pm
In reply to @tapgirl "I only had radiation - no taoxifen or other medication. I was 64 when I was..." + (show)
@tapgirl

I only had radiation - no taoxifen or other medication. I was 64 when I was diagnosed! Good luck to you. With stage 0, the odds are definitely in your favor.

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Thanks! I am a bit younger than ( 46)so it does make me nervous for the return :(. Do you remember what grade yours was? Like 1,2 or 3 I believe they categorize .

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tapgirl | @tapgirl | Jun 6 5:20pm

I have no idea about what grade it was. It;s definitely scary, but, with odds in your favor, you'll probably do fine. your doctors have so much knowledge

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marywc | @marywc | Jun 7 7:57am
In reply to @christylv "Hi! That’s great that it never returned:). Did you take tamoxifen too after radiation? Also, how..." + (show)
@christylv

Hi! That’s great that it never returned:). Did you take tamoxifen too after radiation? Also, how old were you when you were first diagnosed? I have dcis stage 0 also.

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I am also 64 and have DCIS stage 0. At least, that’s what “they” think. I’m putting off my biopsy until I am on Medicare in a few month.

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nanna1948 | @nanna1948 | Jun 8 6:43am

How do you know what stage cancer if you haven’t had biopsies I am confused

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marywc | @marywc | Jun 8 8:42am
In reply to @nanna1948 "How do you know what stage cancer if you haven’t had biopsies I am confused" + (show)
@nanna1948

How do you know what stage cancer if you haven’t had biopsies I am confused

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The doctor who looked at my 2nd mammogram said this is what he thinks I have - DCIS. But, yes, you are right: I won’t know for sure until September which is the first month of my Medicare and that’s when I’ll have the biopsy.

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1 reply
nanna1948 | @nanna1948 | Jun 8 6:06pm
In reply to @marywc "The doctor who looked at my 2nd mammogram said this is what he thinks I have..." + (show)
@marywc

The doctor who looked at my 2nd mammogram said this is what he thinks I have - DCIS. But, yes, you are right: I won’t know for sure until September which is the first month of my Medicare and that’s when I’ll have the biopsy.

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Good luck if you have cancer you have to ask what treatment is recommended radiation or chemo why and for how long. Will you follow up with meds get second opinion you decide. Go with someone else that can take notes my best friend went with me and my husband. We were numb and didn’t hear anything my friend then read everything to us calmly

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marywc | @marywc | Jun 8 8:49pm
In reply to @nanna1948 "Good luck if you have cancer you have to ask what treatment is recommended radiation or..." + (show)
@nanna1948

Good luck if you have cancer you have to ask what treatment is recommended radiation or chemo why and for how long. Will you follow up with meds get second opinion you decide. Go with someone else that can take notes my best friend went with me and my husband. We were numb and didn’t hear anything my friend then read everything to us calmly

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Thank you for the tips! This is helpful and others on this thread have recommended some similar things. Very helpful. I’ll be back & let ya all know.

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1 reply
nanna1948 | @nanna1948 | Jun 8 8:59pm
In reply to @marywc "Thank you for the tips! This is helpful and others on this thread have recommended some..." + (show)
@marywc

Thank you for the tips! This is helpful and others on this thread have recommended some similar things. Very helpful. I’ll be back & let ya all know.

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You will know the right decision it will just feel right. I had a lumpectomy and chose to be on anastrazole my doctors advice. Made it through five years with little side effects. Totally doable. It didn’t hurt that I am retired could rest and be good to me best of luck. Keep us posted

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marywc | @marywc | Jun 8 9:26pm
In reply to @nanna1948 "You will know the right decision it will just feel right. I had a lumpectomy and..." + (show)
@nanna1948

You will know the right decision it will just feel right. I had a lumpectomy and chose to be on anastrazole my doctors advice. Made it through five years with little side effects. Totally doable. It didn’t hurt that I am retired could rest and be good to me best of luck. Keep us posted

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Thank you again! I will
Keep you posted. Thank you!

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julia725 | @julia725 | Jun 9 11:18am

Ask for a MRI so you have more information on the extent of it before making surgical decisions.

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