I had surgery at Cedars Sinai in LA. they did wide incision and removed 3 lymph nodes, two of which had the cancer. that makes me 3A. The tricky thing about recovery from the surgery was getting in and out of bed because I couldn't sit. that was a week or 2, i honestly can't remember. about 3 weeks later I started radiation: 5 days a week for I think 6 weeks. That was ok until the last week and the 2 weeks after which were AWFUL!! I was in so much pain that with the permission of my oncologist I doubled the amount of codeine I was taking and ended up in the hospital with an overdose. Well that's behind me now. I started chemo maybe a month later and have my last one in 2 weeks. It's actually been quite easy. The oncologist said chemo was optional. There is so little research on extramammary pagets of the vulva that he said we couldn't make the decision based on it. I opted to do the chemo. no reaction until 3rd and it's been a couple of days of nausea - really nothing to complain about. As I said, I did the surgery in LA where I had previously been seen for breast cancer (2a) and had my breast cancer oncologist there. She recommended the surgeon and he recommended the radiologist. by the way, the surgeon didn't think i needed either radiation or chemo but the radiologist and the oncologist thought i needed both. I live too far from LA to have the radiation there, so I started seeing an oncologist at UCLA-Santa Barbara who recommended the radiologist. The Santa Barbara radiologist didn't think I needed chemo, but as I said, i did it anyway. Well that was a long story.