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Aggravation with results

Autoimmune Diseases | Last Active: Jun 10 8:51am | Replies (15)

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@windyshores

@sharing thanks, I have good doctors and was diagnosed with lupus 20+ years ago.. However, an ANA by itself doesn't show any specific autoimmune disorder, as you said, and in fact does not even show the presence of any autoimmune disorder, since some healthy people have positive ANA's. So I am curious how you got your diagnosis of lupus or of Hashimoto's.

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Replies to "@sharing thanks, I have good doctors and was diagnosed with lupus 20+ years ago.. However, an..."

You are correct. It’s a crapshoot, really and unfortunately. We’ve progressed so far that lupus is not necessarily a death sentence. 50 years ago, my aunt had lupus but it was the kind that affected her kidneys. Her daughter has discoid.

I was accidentally diagnosed with both, but before the ANA, thyroid levels were sky high so after a test, Hashimoto’s. I DID have Grave’s about 10 years earlier. Was told it was in remission.

I have had thygeson’s punctuate keratitis about 20 years or more ago. Lost vision in one eye for 2 weeks. Again, it went into remission

I’ve been tested and am sensitive to any meat except seafood about 30 years ago. Also asthma, but not really.

The autoimmune issues probably all fall under the lupus umbrella. And, since my early 20’s, I have dealt with illness accompanied with the feeling everyone thought I was crazy. My own husband thought I was coming apart at the seams, lol, but it was Grave’s disease so bad I took propanol for a couple of years.

I hope this helps?
Love, Sharing

Also

@windyshores
I got diagnosed with Hashimoto’s via thyroid panel bloodwork (TSH, T3, T4, and TPO). You need to know if thyroid autoantibodies show up which means your immune system is attacking your thyroid gland. Some people may have sub-clinical thyroid issues because what is “normal” for them may differ from the “normal” reference range. For example, the maximum on the reference range for TSH may be 5.0 but I was like a zombie when my TSH went above 2.0. Doctors need to listen to patients’ symptoms and not just test results. Many do not listen and in my experience, many do not even review the results of the tests they sent you for. It is a crazy, wasteful healthcare system that does not care for patients. It is a for profit system that does not care about the quality of life for patients.