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@robgone

I super appreciate your reply and your detailed feedback. As you said, every journey is unique, but ours have some striking similarities. Did you start taking prednisone when you first got the PMR? And, are you still on it?

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Replies to "I super appreciate your reply and your detailed feedback. As you said, every journey is unique,..."

I resisted prednisone for several years until I had Covid and that shot my inflammatory markers way up. I simply could/would not deal with that symptom again.

I started at 5mg, then went 10mg within the first 10 days. Stayed there for one month, dropped to 7.5mg for one month, then to 5mg. That is my Rheumy's preferred plan. As I started dropping from 5mg I designed my own titration plan. Rheumy was not thrilled but agreed to let me try it. I agreed to go back to 5mg if I had a flare and contact her office. I was able to shave off about 5 weeks to a 4 month process by using my plan. It was not easy to manage and I had to keep notes on my calendar daily to stay on track. I would not recommend it in general, but it did work for me. Total time on prednisone was about 6 months.

Every doctor, including my endocrinologist all said 10mg is a small dosage. It did however have side effects, albeit a small dosage. To get 90-95% of my life back prednisone was worth it.