← Return to Crawling sensation all over body

Discussion

Crawling sensation all over body

Neuropathy | Last Active: Jun 8 11:50am | Replies (15)
Comment receiving replies
@amandayounts14

Neuropathy is strange. I have CIDP and 2 other autoimmune disorders, and I'm an infusion RN, administering the same meds that I take. I know the whole job thing is tough. I am always exhausted. I really could go on disability, but my family needs my income.

Jump to this post

Replies to "Neuropathy is strange. I have CIDP and 2 other autoimmune disorders, and I'm an infusion RN,..."
John, Volunteer Mentor | @johnbishop | Jun 8 7:23am

Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I can imagine that provides a lot of opportunity and insight into how the treatments work and the impact on the patients.

Neuropathy is definitely strange with so many different symptoms, causes and treatments. I don't have any real pain with my neuropathy which I've had for over 20 years before seeking a diagnosis. Even then after getting a diagnosis the neurologist didn't have any treatment answers to help with the numbness which is what brought me to Connect. I have idiopathic small fiber peripheral neuropathy and shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. There are some discussions on CIDP along with other autoimmune disorders. The Connect search function is helpful finding them. Here's a link to the discussions on CIDP - https://connect.mayoclinic.org/search/discussions/?search=CIDP.

Do you mind sharing what brought you to Connect?

VIEW AND REPLY